We had our MRI on Thursday at Vanderbilt Children's Hospital. I sat in a tube for 2 hours straight with my arms above my head and I couldnt move ( I couldnt even if I wanted to, I was in a very small pediatric tube). It was no fun at all. After that they just said "thanks, we'll have a full report in 48 hours". So I will know next week. My appointment with the doctors is on Wednesday so I expect to have a little more information by Wednesday. The most I will probably find out is 1. a better idea of the location of the tumor 2. estimated time of possible surgery (when she is first born vs. a few months old) 3. where I should deliver 4. how I should deliver (C-sec or vaginal) 5. what hospital (vanderbilt or williamson county). These are the main questions that will help us all feel like we can plan a little better for the birth and aftercare.
Thanks for everyone's love and support. I am grateful to have so many friends and family that love us so much and keep us in your thoughts and prayers:)
Sunday, September 19, 2010
Saturday, September 11, 2010
Friday, September 10, 2010
News with Indie, Pregnancy and so on.
So I am just getting around to posting and update. Sorry for the delay and I know many family and friends are eager to know exactly what is going on, and so am I.
Indie:
The doctor called me in mid August and told me Indie had some type of mass on or near her left kidney. This is a call you never want to get and I was completely heart broken and devistated. I spent a few days crying and not understanding and then started to demand more answers. I dont even want to get into the emotional details, I think anyone could imagine and understand the feelings that would come with this news. I had another ultrasound scheduled with a Perinatologist to over this with me. I went in, they did the ultrasound and then he pointed to the big white circle that was as bright as bone in her belly and told me this was not suppose to be here. They were unsure of what it was, but he thought possibly a wilms tumor which is very rare (500 cases a year). This was just a guess.
I made an appt with Vanderbilt Children's Hospital next to get another opinion. 2 weeks later, got in with them. They basically told me the same thing, they were unsure what it was and wouldn't give me any real answers. They said it could be adrenal, could be renal or could just be near there. This means it could be on the kidney or the adrenal gland or something else. They do know it has no blood supply of its own and it hasn't really grown much since it was first discovered (3cm). I think it has grown a little but its all at the discression of the ultrasound tech who is measuring a blurry ultrasound picture. I think she said 3.22 cm after the last ultrasound.
They scheduled me for a Maternal Fetal MRI at Vanderbilt this coming Thursday at 1pm. They hope to at least get better depth perception and a better view of what its attached to and when they should take it out.
As far as Indie's health, everything else looks perfect, her head, lungs, heart, bowels, liver etc, they all look great and her growing is 60th percentile. As far as my health, no gestational diabestes or high blood pressure or water retention and no other problems.
They want me to deliver her at Vanderbilt to play it safe. They are willing to induce at 39 weeks to help with scheduling. They have no answers at this time in terms of should I get a c-section, when would Indie have to have surgery to remove this mass, is it cancer or not, is it lung tissue that is just displaced or something more serious... no answers.
We hope to have more answers the following Wednesday after the MRI.
We are praying for the best but preparing for the worst, just to be safe. We are keeping positive and trying not to worry as much as we can. We want to focus our time and attention on what can be done rather than what has already happened. Keep us in your thoughts.
Lindsay
Indie:
The doctor called me in mid August and told me Indie had some type of mass on or near her left kidney. This is a call you never want to get and I was completely heart broken and devistated. I spent a few days crying and not understanding and then started to demand more answers. I dont even want to get into the emotional details, I think anyone could imagine and understand the feelings that would come with this news. I had another ultrasound scheduled with a Perinatologist to over this with me. I went in, they did the ultrasound and then he pointed to the big white circle that was as bright as bone in her belly and told me this was not suppose to be here. They were unsure of what it was, but he thought possibly a wilms tumor which is very rare (500 cases a year). This was just a guess.
I made an appt with Vanderbilt Children's Hospital next to get another opinion. 2 weeks later, got in with them. They basically told me the same thing, they were unsure what it was and wouldn't give me any real answers. They said it could be adrenal, could be renal or could just be near there. This means it could be on the kidney or the adrenal gland or something else. They do know it has no blood supply of its own and it hasn't really grown much since it was first discovered (3cm). I think it has grown a little but its all at the discression of the ultrasound tech who is measuring a blurry ultrasound picture. I think she said 3.22 cm after the last ultrasound.
They scheduled me for a Maternal Fetal MRI at Vanderbilt this coming Thursday at 1pm. They hope to at least get better depth perception and a better view of what its attached to and when they should take it out.
As far as Indie's health, everything else looks perfect, her head, lungs, heart, bowels, liver etc, they all look great and her growing is 60th percentile. As far as my health, no gestational diabestes or high blood pressure or water retention and no other problems.
They want me to deliver her at Vanderbilt to play it safe. They are willing to induce at 39 weeks to help with scheduling. They have no answers at this time in terms of should I get a c-section, when would Indie have to have surgery to remove this mass, is it cancer or not, is it lung tissue that is just displaced or something more serious... no answers.
We hope to have more answers the following Wednesday after the MRI.
We are praying for the best but preparing for the worst, just to be safe. We are keeping positive and trying not to worry as much as we can. We want to focus our time and attention on what can be done rather than what has already happened. Keep us in your thoughts.
Lindsay
Wednesday, July 14, 2010
Update - 2 months later! lol
So new news in the last 2 months:
Baby girl! Name is going to be Indie Lynn Holland but not sure on how to spell Lyn Lin Lynn yet.
I am now 22 weeks pregnant and getting huge. I feel moody and emotional but pretty good overall. I have had 4 ultrasounds so far and will get another in 4 weeks. They told me the bowels are echogenic right now which means they are bright white on ultrasound. It is 99% nothing, they just want to run some tests to be positive. All tests came back negative so far so everything looks really good. She is currently 1 lb 3 oz and has a strong heart beat of 158bpm. She is very active and kicking me a lot this week. Gavin loves to feel her kick and he loves to talk to her.
I painted and fixed up her room and I love it.
I painted and fixed up her room and I love it.
I am trying to get organized and orderly before she gets here and its much different trying to do this with a 2 year old in tow! Much harder than last time!
Pictures Below:
Sunday, May 9, 2010
Wednesday, May 5, 2010
Crazy Tennessee Weather
Finally over the cold, cold winter in Tennessee and it has been beautiful and in the 80's for the past month or so. We had a devistating flood this past weekend that left many people without a home and completely devistated many businesses and lives. We were thankfully not effected by this, but its very sad for all of those in shelters and without flood insurance who are left with nothing right now.
On to a brighter note: Gavin has been wonderful lately. Very happy and always trying new sports and new games. He is very talkative and can articulate what he wants very well. He usually wears big boy underwear and I would say he is potty trained. He has some accidents, but for the most part he goes on the potty. He is very excited to become a big brother. He talks about it often and he says he wants a 'baby sister', but who knows.
Gavin has had so many different sitters and nannys for the past several months I am happy to finally feel like he has a little structure. He goes to someone else's house Monday and Wednesday where we gets to play all day with his friend Camden who is right about the same age, and then on Tuesday and Thursday he gets to play at our house with his sitter Haley who takes good care of him as well. He seems happy with this arrangement and if Gavin is happy, mommy is happy.
On to a brighter note: Gavin has been wonderful lately. Very happy and always trying new sports and new games. He is very talkative and can articulate what he wants very well. He usually wears big boy underwear and I would say he is potty trained. He has some accidents, but for the most part he goes on the potty. He is very excited to become a big brother. He talks about it often and he says he wants a 'baby sister', but who knows.
Gavin has had so many different sitters and nannys for the past several months I am happy to finally feel like he has a little structure. He goes to someone else's house Monday and Wednesday where we gets to play all day with his friend Camden who is right about the same age, and then on Tuesday and Thursday he gets to play at our house with his sitter Haley who takes good care of him as well. He seems happy with this arrangement and if Gavin is happy, mommy is happy.
Tuesday, May 4, 2010
11 Week Belly
I am a few weeks behind. I still need to take and post my 12 week belly as I will be 13 weeks on Friday. Here is 11 week belly.
Subscribe to:
Posts (Atom)